Sunday, April 26, 2020

Here is my story so far. Maybe you can make some sense out of it?

I started to feel very tired when I was 25. I am 30 now and it only got worse. I almost never feel refreshed after sleeping. Very very few days I wake up and feel productive. I cannot remember how it was like to just feel normal. My workdays are not very productive. I get in maybe 3 hours of physical labour. More if its just on the computer. Luckily I still make enough money. My business is going well and is successful. I am definitely not depressed. I have a lot of plans and things that I want to do. I am not overweight and I do sport 2 times a week where I can even compete quite well. I eat very healthy as well.

I saw all kinds of doctors numerous times. They tested anything they could numerous times. Thyroid, liver, kidney, stool, blood, heart, lungs, brain MRI, needle stuck in the spine to check the liquid in there. Going all out on exercise bikes, checking for viruses and parasites. Nothing. Everything seems normal. All blood levels were always normal. They only diagnosis that sometimes comes up is Chronic Fatigue Syndrome but they say they cannot know for sure if I have it or if that even exists or what it is. Its difficult to determine since the knowledge of CFS is limited.

I don’t have brain fog or worse days after exercise. There are no patterns to my fatigue. I don’t have muscle pain. I myself do not see me as someone that fulfils the CFS criteria.

I’ve been to a “neck and nose” doctor as we call them in Germany. He gave me a puls oximetry sensor to use at home one night and I did one night in a sleep lab. Nothing was found, but the lab setup seemed less than ideal for me. I am not convinced that this is proof of anything. I don’t snore either, I am young and normal weight. However tonight I woke up and took a huge gasp for air. My girlfriend noticed it as well, so I wasn’t dreaming. Thinking back, I might have had that more often. Maybe this is Sleep Apnoea? He found one thing that is wrong with my nose. The wall that separates both nostrils has a hole in it which causes turbulent air flow. That is something that cocaine addicts get or people that get punched in the nose. Neither happened to me. He says it doesn’t have to get fixed unless it causes issues.

So I ordered a Oxygen logger today to test it for myself. I am an engineer, so collecting data is kinda my thing.

Can any of you make sense of this?

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from
https://www.reddit.com/r/SleepApnea/comments/g8dw2m/here_is_my_story_so_far_maybe_you_can_make_some/

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